50-60, although I have moderate to sever symptoms. I never heard of this person before or the course. The Fibromyalgia Wellness Project , a research study sponsored by the National Institute of Arthritis, Musculoskeletal and Skin Diseases (N... Fibromyalgia is hard enough, but are we making ourselves worse - or putting ourselves in potentially lethal situations - with the myriad of ... New Global Year Campaign Launches October 19 Each year, IASP chooses a different aspect of pain that has global implications and sponsors a... From Hyperbole and a Half : Print this out and take it to your next doctor's appointment. A Chronic Dose | A blog about chronic illness, healthcare, and writing. ME/CFS & Fibromyalgia Rating Scale; 100: Fully recovered. As I go along in this course, I will share things I learn in an effort to help all of you. theatre and I are there already. 80 : Near normal activity level with some symptoms. Does it work ? I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Considering my activity level and symptoms, I am currently about a 25. About.com Fibromyalgia & Chronic Fatigue Syndrome, Fibromyalgia Specialists Alternative Medicine. Occasionally i have dropped to a 20 but only for a few days. -- 90 Normal activity level with mild symptoms at times. Email a Friend ; 100 : Fully recovered. If you've read my recent posts, you know that I'm enrolled in an online Fibromyalgia self-help course. I'd say I'm at a 50. "If there is a discrepancy between your score based on activity level and your score based on symptoms, rate yourself using the severity of your symptoms." I have never had fibromalgia. I'm only halfway through this chapter and have found something I want to share with you, my readers and friends who also suffer from these debilitating disorders: the rating scale. Trouble is, I do backslide still...then it's trying to claw my way back up again. MANY of the symptoms overlap with CFS. Very interesting! So sayeth Dr. Campbell. It's hard to get much done, espcially when I have a 6 and 7 year old to take care of as well. Thanks for the info. Of course, 100 would be ideal but I want to be realistic here! I bounce between 20-30 with occasional days up int he 40's usually followed by a couple of days at 10. products, or services. ME/CFS & Fibromyalgia Rating Scale. Everyone with Fibromyalgia and/or CFS has different circumstances and different levels of pain and abilities. Today I'm a 10. I'd say I'm about a 20-30! 90Normal activity level with mild symptoms at times. I would say I'm between a 30-40. Photography by Peter Arnell. 90 : Normal activity level with mild symptoms at times. I guess Im really lucky to be a 70, I have periods where i drop down the scale. 80: Near normal activity level with some symptoms. lol, Geez, on this scale I fluctuate between a 10 and a 20, with provigil I used to be 30-40. HELP guys please. It seems that I'm trying to convince myself that I'm 30 points above where I really am. I read the message boards a lot, but this is the first time I've written. Dr. Campbell says, "To get an idea of how your situation compares to others, place yourself on the CFS/Fibromyalgia Rating Scale.". Just chronic fatigue for many years. Normal activity level with no symptoms. I plan to share this with my docs. Thank you for sharing. (it's not helping at the moment) Lately I swear I think I've peaked below a ten (for like two months) I've just been in bed most days (I was forced to get out a few times for my cousins hospital stuff, but hated it lol)(no baths etc) I've been playing computer games in bed with my little nephews, and that kills me Lol, I have to send them up, so instead of reclining at 45 degree angle, I can lower the bed down to a 10 lol. Nice long answer huh? Though there are days I am bedridden, there are also days I'm able to be fairly active. The course is based on Dr. Br... CFIDS & Fibromyalgia Introductory Self Help Course, Denise @ Sunflowers, Chocolate and Little Boys, A very well-written and thought-provoking book for the chronically ill, Invisible Illness Awareness Week Blog & News. we need some help with the decor if anyone is around?? Normal activity level with no symptoms. This helps me put things into perspective. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. Thanks for sharing.Jenn, Thanks for sharing, this is a very interesting tool. Crazy. Hope For Those Dealing With Chronic Pain: Stories, Struggles, and Helpful Tips. I'll be a 20 or so soon. Mostly mild to moderate symptoms. I used to be a definite 20, but lately I have been able to crawl up to thirty-something. 70 : Able to work full time but with difficulty. I went to WalMart with my son today to pick up a couple of things and to get my hair cut. My pain - My pain is not your pain. Thanks!! Sick.......oh very sick and I have my long periods of wellness...yea. It's hard to stay in denial when you've read something otherwise, lol. Hmm. Anybody with FMS, ok most anybody, knows or has heard about the new drug on the market for our condition - Savella. When asked to rate your pain on a scale of o... For anyone who knows someone who suffers from Fibromyalgia: 1. Participation on this site by a party does not imply endorsement of any other party's content, Sharecare, Inc. All rights reserved. My hubby is a great help. Did you pay for that? Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. RESULTS : The FibroFatigue scale is an observer’s rating scale with 12 items measuring pain, muscular tension, fatigue, concentration difficulties, failing memory, irritability, sadness, sleep disturbances, and autonomic disturbances (items derived from the CPRS) and irritable bowel, headache, and subjective experience of infection (new items).
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